What do Whitney Frost’s kids have?

Riley and Harrison, the children of Jason and Whitney Frost of Hopkinsville, have a rare inherited disorder, infantile neuroaxonal dystrophy, that essentially stops the nerves in the body from functioning properly and makes it impossible for the brain to send messages to other parts of the body, their mother explained.

What condition did Riley and Harrison have?

Harrison suffered from Infantile Neuroaxonal Dystrophy, or INAD, a disease which effects motor skills and voluntary muscle function. Life expectancy for children who have INAD is usually 8 to 12 years of age. Harrison’s older sister Riley, 8, has also been diagnosed with INAD.

What is INAD life expectancy?

For the first few years, a baby with INAD will be alert and responsive, despite being increasingly physically impaired. Eventually, because of deterioration in vision, speech, and mental skills, the child will lose touch with its surroundings. Death usually occurs between the ages of 5 to 10 years.

How many cases of INAD are there in the world?

Its specific incidence is unknown, however it is estimated that INAD affects approximately 150 children worldwide. A diagnosis of INAD can now be confirmed through genetic testing of the PLA2G6 gene.

Why was Riley upset in inside out?

When it is time for Riley and her parents to move to San Francisco, Riley becomes sad and misses her life in Minnesota. Riley starts to go from joyous and happy to sentimental and a bit depressed, on account of she misses the good old days in Minnesota.

How old were Riley and Harrison?

Riley Frost, 5, looked healthy at birth with no signs of any illness. She was even feeding herself three years ago. Now, however, she and her 3-year-old brother Harrison are dying. “They started out normal,” Whitney Frost, their mother, says.